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tingling in toes Archive
Hi guys, been a forumite for years, glad to find the boards back! Long history of mostly weird stuff, but pertinent details include viral encephalitis that affected my right side and left me with SP epilepsy which I take Topamax for. Complicated migraine, and chronic fatigue,[link widoczny dla zalogowanych], although I think that may be a generalised name for something else lurking and yet to be discovered Wink.
When I got the encephalitis I had bodywide twitching etc which I put down to BFS. That has settled. When I went onto the Topamax I got the classic finger, toe and face tingling and that pretty much settled too (been on T for about 3 years now), except for my toes. The tingling seems to have remained.
It worsens if I sit and put pressure on them (like they are scrunched up) or when walking for a while, or in shoes with pressure. Sometimes it is just out of the blue. Sometimes it is massive tingling, often it is just numbness. It seems to have worsened in the last 12 months. I have also developed blueness in my fingers and toes with cold (Reynauds??) and have temp intolerance all round (heat and cold). When I'm tired I also get a restless right leg, which is my "bad" side - odd I only get it in the one leg tho'!
I take supplements on and off, magensium for migraine, B12 etc. Pretty good diet, but it could always be better Wink Any thoughts? Thanks
09-23-2006, 07:23 PM
I also have migraines and headaches,[link widoczny dla zalogowanych]. Though I think a good portion of my problem is associated with structural problems in my neck. Topamax is very popular and from what I heard has a couple favourable side effects.
Magnesium and calcium should help with twitching. I belevie it is magnesium oxide to stay away from as it's not absorbed well,[link widoczny dla zalogowanych], and you may have frequent trips to the loo.
Magnesium citrate is a better choice. I take a mag/calcium combo that help me with cramping in calf muscles at night.
Regarding headaches, aside from the Topomax,[link widoczny dla zalogowanych], getting proper sleep and practicing relaxation should help tremendously if headaches are associated with stress and tension.
09-24-2006,[link widoczny dla zalogowanych], 07:51 AM
Have you been seen by a good neuro specializing in peripheral Neuropathy? I'm guessing that you see one for the epilepsy. So have you been seen by a rheumatologists?
Also, with the migraines, they could be caused by structural problems in your neck. This is something that I had and a ruptured disk and subsequent fusion helped them a lot. So an evaluation by a rheumatologist to see if there is degeneration from bone problems might be in order. I believe Glenn has posted that perpheral neuropathy can be caused by problems in the upper spine.
Just some ideas I'm throwing at you,[link widoczny dla zalogowanych].
Billye
10-08-2006,[link widoczny dla zalogowanych], 09:25 PM
I swear you are talking about me! Wow--you covered all my symptoms except maybe for the dizziness. I can't imagine giving up walking barefoot,[link widoczny dla zalogowanych], barefoot seems to be my only relax time for my feet. I hate shoes,[link widoczny dla zalogowanych], they touch me. Sandals are best, but can't wear them in winter. I do have headaches, all the time and get very dizzy when I look up, usually at something close, like when being hugged. I also find that I tend to drag my feet at times and sometimes must consciously remember to pick my feet up. I have Raynauds in my hands, but never noticed it in my feet, not yet anyways. I get a pinched nerve in my neck/shoulder area at least once a month--or at least the feelings of a pinched nerve. The muscles in my shoulder bunch all up and hurt so much. So yeah, it sounds like you are talking about me.
05-15-2011,[link widoczny dla zalogowanych], 06:07 PM
Hi guys, been a forumite for years, glad to find the boards back! Long history of mostly weird stuff, but pertinent details include viral encephalitis that affected my right side and left me with SP epilepsy which I take Topamax for. Complicated migraine,[link widoczny dla zalogowanych], and chronic fatigue, although I think that may be a generalised name for something else lurking and yet to be discovered Wink.
When I got the encephalitis I had bodywide twitching etc which I put down to BFS. That has settled. When I went onto the Topamax I got the classic finger, toe and face tingling and that pretty much settled too (been on T for about 3 years now), except for my toes. The tingling seems to have remained.
It worsens if I sit and put pressure on them (like they are scrunched up) or when walking for a while, or in shoes with pressure. Sometimes it is just out of the blue. Sometimes it is massive tingling, often it is just numbness. It seems to have worsened in the last 12 months. I have also developed blueness in my fingers and toes with cold (Reynauds??) and have temp intolerance all round (heat and cold). When I'm tired I also get a restless right leg, which is my "bad" side - odd I only get it in the one leg tho'!
I take supplements on and off,[link widoczny dla zalogowanych], magensium for migraine,[link widoczny dla zalogowanych], B12 etc. Pretty good diet, but it could always be better Wink Any thoughts? Thanks
I used Topomax from August 2005 through November 2005 and my toes are still numb from it,[link widoczny dla zalogowanych]. Other side effects are that food never tastes the same again,[link widoczny dla zalogowanych]. Cramping and numbness can be relieved by massage and hot bath massages. The FDA needs to look into this drug not only for the birth defects it caused but for the blood circulation problems it is causing for years after being taken.
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